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Surajo Sulaiman

QEII Scholars Blog Series – “Surviving polio in Nigeria”

This article was contributed by Surajo Sulaiman, a doctoral student in the Rehabilitation Science program. Surajo is a physiotherapist by training and throughout his career has worked as a clinician, primarily with persons with physical disabilities in Nigeria. Through his research, Surajo hopes to improve the quality of life of polio-survivors and other persons with disabilities in Nigeria.

Poliomyelitis also known as paralytic polio is an acute viral infection which affects the motor neurons in the spinal cord and brain stem, leading to acute flaccid paralysis of the limbs (Ahmad, Arif, Chaudary, & Anjum, 2014; CDC, 2015). Globally, over 25 million people were disabled by paralytic polio with almost 1 million living in Africa (Groce, Banks, & Stein, 2014). In Africa, Nigeria was the last country declared polio-free, although not officially certified by the Global Polio Eradication Initiative (GPEI). Thus, Nigeria is likely to have the largest number of polio-survivors in Africa (Renne, 2012; WHO, 2016). These survivors are mostly children and young adults, who are often vulnerable to social isolation and lack basic amenities such as health care, education and gainful employment, which may adversely affect their quality of life (Groce et al., 2014). Currently, abundant resources from the government of Nigeria, local non-governmental organizations, and international donors are channelled toward sustaining the polio eradication campaign, neglecting the welfare of individuals disabled by the disease (Renne, 2012).

Polio-survivors constitute a significant portion of persons with disability in Nigeria (Renne, 2006). Although there is no policy aimed at  improving the welfare and quality of life of polio-survivors specifically, there is an existing policy on the welfare of persons with disability in Nigeria, the Nigerians with Disability Decree of 1993 (Asiwe & Omiegbe, 2014). This policy originates from the military regime and was meant to ensure protection of rights, equal opportunities, and social inclusion for all persons with disability, irrespective of the cause of their disability. Unfortunately, most polio-survivors and other persons with disabilities have not yet reaped the benefits of this policy (Lang & Upah, 2008; Sango, 2013). In addition to the adverse living condition of persons with disability in Nigeria, polio-survivors are prone to further disability that is secondary to post-polio syndrome, which is believed to be true for about 40% of these survivors decades following the initial polio infection (McNalley et al., 2015; Sango, 2013; Stuifbergen, 2005). There is an urgent need for all stakeholders concerned with polio eradication and social welfare of persons with disability in Nigeria to extend their services to polio-survivors. These services should meet the social and healthcare needs of polio-survivors and safeguard their rights as enshrined in the United Nation’s Convention on the Right of Persons with Disabilities (CRPD) (Groce et al., 2014).

As a QEII scholar and a doctoral student at the School of Rehabilitation Therapy, my research is focused on the quality of life of polio-survivors in Nigeria with the aim of identifying their unmet social and healthcare needs. My planned doctoral research will involve interviews of individuals identified through the Kano Polio Victims Association (KPVA), an umbrella body of polio survivors in Kano, Nigeria. After I receive my Ph.D. degree, I hope to return to Nigeria to contribute toward the improvement of the wellbeing of polio-survivors. By conducting focus group discussions with polio-survivors and stakeholders in the ministry of health and social welfare, I hope to support the development of recommendations based on the findings of my study that could be used to positively influence future policy.

References

Ahmad, T., Arif, S., Chaudary, N., & Anjum, S. (2014). Epidemiological Characteristics of Poliomyelitis during the 21 st Century ( 2000-2013 ). International Journal of Public Health Science3(3), 143–157.

Asiwe, C. C., & Omiegbe, O. (2014). Legal and Ethical Issues of Persons with Special Needs in Nigeria. Educational Research and Reviews9(15), 516–7; 522. http://doi.org/10.5897/ERR2010.056

CDC. (2015). Poliomyelitis. In Epidemiology and Prevention of Vaccine-Preventable Diseases: Centers for Disease Control and Prevention (U.S.) (pp. 297–310).

Groce, N. E., Banks, L. M., & Stein, M. A. (2014). Surviving polio in a post-polio world. Social Science and Medicine107, 171–178.

Lang, R.; Upah, L. (2008). Scoping Study:Disability Issues in Nigeria. The British Department for International Development (DFID). Retrieved from https://www.ucl.ac.uk/lc-ccr/downloads/scopingstudies/dfid_nigeriareport

McNalley, T. E., Yorkston, K. M., Jensen, M. P., Truitt, A. R., Schomer, K. G., Baylor, C., & Molton, I. R. (2015). Review of Secondary Health Conditions in Postpolio Syndrome. American Journal of Physical Medicine & Rehabilitation94(2), 139–145.

Renne, E. P. (2006). Polio and Associations for the Disabled in Nigeria. The Journal of International Institute13(2), xx–xx.

Renne, E. P. (2012). Polio in Nigeria. History Compass10(7), 496–511.

Sango, P. N. (2013). Visible But Invisible People Living With Disabilities in Nigeria. Center for Leaning Disabilities in Nigeria.

Stuifbergen, A. K. (2005). Secondary conditions and life satisfaction among polio survivors. Rehabilitation Nursing : The Official Journal of the Association of Rehabilitation Nurses30(5), 173–179.

WHO. (2016). Polio surveillance: tracking progress towards eradication, worldwide, 2014–2015. World Health Organisation Weekly Epidemiological Record91(15), 193–2008.

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